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Ah that sucks Lynora. As a fellow haver of degenerative diseases I understand the "every day tasks can be an adventure(an annoying one)" experience.
Still you seem to have a good attitude about it, that's more than I can manage sometimes on some of my more crippling days =/
Lying in bed all day is great! Unless you're forced to lie in bed all day, than it's annoying! GRRRRRRRR =)
Yeah, invisible illness sucks. And people often do not get it. But I realized a couple years back that I can let it bog me down or I can accept that reality doesn't match my plans and make new plans. My mom taught me that when life is tough it's okay to feel sorry for yourself. Go ahead and take like fifteen minutes and throw a pity party. And then put it away and remember all the good things you've still got going for you. Don't dwell on the bad stuff and it won't hold you back. She was easily the most positive person I've ever known. And that's in spite of surviving cancer twice, having heart problems, and an autoimmune disease that slowly killed her. She also taught me that life isn't fair. It's the first thing i ever remember her telling me actually. And it's a lot easier when you let go of the expectation that life is somehow fair. I don't come close to having as positive an attitude as she did, but I try at least. :)